There has been growing momentum from both patients and healthcare professionals to explore a potential change in the name of PCOS to better reflect the origins, complexity and seriousness of the condition.

There is a survey open to feedback on whether the name should be changed - or not. And if so, what the new name should be.

This website has been set up to address some of the frequently asked questions about a possible name change

Join in the discussion on social using #PCOSNameChange

Polycystic Ovary Syndrome (PCOS) affects 1 in 8 women around the world. It has many distressing symptoms affecting quality of life such as excess hair, weight management issues, acne, hair loss, depression and anxiety and difficulty conceiving. It is a life-long condition that carries many health risks such as problems in pregnancy, increased risk of endometrial cancer, cardiovascular disease, fatty liver, sleep apnoea and type 2 diabetes.

PCOS is not a disease of the ovaries and contrary to what the name suggests, there are no cysts. On ultrasound, the ovaries may appear enlarged due to egg containing follicles that have not matured to ovulation. They do not grow bigger, burst or cause pain like an actual ovarian cysts.

This website has been created by Verity (PCOS UK)